The day after delivery Shiloh had to be admitted to the Chambersburg NICU for low sugar levels and struggling too much to breathe. He spent 2 nights there and has fully recovered. Tonight he stays in my room again and we should be going home tomorrow. While these are concerning things, it is still much…
Asher had a pediatric neurology follow up today. He is successfully discharged from their care to continue with regular pediatrician and early intervention services. His weight and head circumference are in the 50th percentile while his height is in the 99%! My little preemie is not so small anymore. Afterward, we had a good visit.…
Want a super real look at life as a NICU parent? 3am alarm went off. I fumble about on the nightstand to reach my phone to silence that awful ruckus. I had put the phone well within easy reach but I am not the most coordinated when waking from awful dreams. I start to yell…
Our schedule the past 2 days involved lots of cuddle time in NICU. We go in every 3 hours for feedings, diaper changes, etc. While our room is a mere 100 yards away, the hallway journey is long. After each session we make it back to the room in time for food, shower, etc and…
We’ve got a big day today! Asher has a neurological exam in York. A whole panel of specialists will be checking his progress. We also plan to quickly stop in the NICU to donate some items. It’s the first time we’ve gone back since we were discharged. Hope to see a few of his nurses.…
Staring into his eyes reminds me that 3 miscarriages, a uterine septum resection surgery, a c section, an early delivery and a long stay in NICU, and now the seemingly unending wound vac phase have all be
2 days of being home. It’s so much easier to get some sleep here. And contrary to most ideas about post c sections, I actually find myself able to rest more here. Maneuvering around in a hospital and racing back and forth to NICU is no small thing. I am grateful for the family and…
We have had our room transferred again this time we are much closer to NICU but on a day to day basis. We could find out by 7pm each day if we get to stay the night or not. The room room is much nicer than most hotel rooms even. However, I can’t figure out…
10pm update: Asher gained half an ounce since yesterday! That is a great achievement for him when combined with no assistive heat. Doctors don’t care so much about a weight amount but an overall consistent increase. Daily update: We had a very encouraging report on doctor’s rounds today. Tonight Asher will likely get to start…
Today’s goals: #1 get my pico vacuum bandage evaluated and likely removed by the OB that performed the c section. This will be my first time outside of the hospital in 2 weeks. It’s a short trip 5 min away but first outside air in weeks. It was more wet than expected for sure but…